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How to improve Access to health care for people with intellectual disabilities? [printed text] / Céline Ricour, Author ; Anja Desomer, Author ; Marie Dauvrin , Author ; Carl Devos , Author . - Brussels [Belgium] : KCE = Federaal Kenniscentrum voor de Gezondheidszorg = Centre Fédéral d'Expertise des Soins de Santé = Belgian Health Care Knowledge Centre, 2022 . - 304 p. : ill. ; A4. - (KCE Reports. Health Services Research (HSR); 361) .
ISSN : D/2022/10.273/63 : € 0,00
Languages : English (eng)

Descriptors:	Indexation 2019-06 ; Belgium ; Health Services Accessibility ; Intellectual Disability ; R361 Classification WM 300 Intellectual disability
Contents note:	LIST OF FIGURES 6 -- LIST OF TABLES . 7 -- LIST OF BOXES .11 -- LIST OF ABBREVIATIONS .14 --  SCIENTIFIC REPORT 17 -- 1 CHAPTER 1: INTRODUCTION 17 -- 1.1 CONTEXT 17 -- 1.2 RESEARCH QUESTIONS AND GENERAL METHODOLOGY 18 -- 1.3 CONCEPTS AND DEFINITIONS 21 -- 1.3.1 Impairment and disability .21 -- 1.3.2 Intellectual impairment and disability .23 -- 1.3.3 Health disparities, health inequities 24 -- 1.3.4 Reasonable adjustments .25 -- 1.4 LEXICON .27 -- 2 CHAPTER 2: BELGIAN LANDSCAPE OF HEALTH CARE FOR PEOPLE WITH ID 29 -- 2.1 AUTHORITIES AND REPRESENTATIVES 29 -- 2.1.1 National Superior Council for Disabled People .31 -- 2.1.2 Belgian Disability Forum 31 -- 2.1.3 Unia .31 -- 2.2 DISABILITY RECOGNITION .32 -- 2.3 PLACES OF RESIDENCE .33 -- 2.3.1 Services for children and youths 34 -- 2.3.2 Services for adults 34 -- 2.4 ACCESS TO HEALTH CARE AND ORGANISATION OF CARE 35 -- 2.4.1 Overview of the 7B model of access applied to people with ID 35 -- 2.4.2 Availability 39 -- 2.4.3 Affordability .39 -- 2.4.4 Trustworthiness .41 -- 2.4.5 Familiarity .43 -- 2.4.6 Reachability .44 -- 2.4.7 Functionality 44 -- 2.4.8 Comprehensibility .47 -- 2.5 CONCLUSION 47 -- 3 CHAPTER 3: QUANTITATIVE ANALYSIS OF HEALTH CARE USE 49 -- 3.1 INTRODUCTION .49 -- 3.2 DATA SOURCES 49 -- 3.3 METHODS 52 -- 3.4 LIMITATIONS 52 -- 3.5 RESULTS 53 -- 3.5.1 People with ID demographics 53 -- 3.5.2 Breast cancer screening 56 -- 3.5.3 Cervical cancer screening 57 -- 3.5.4 Contact with a general practitioner .58 -- 3.5.5 Global medical record 59 -- 3.5.6 Contact with a dentist .60 -- 3.5.7 Contact with a gynaecologist .62 -- 3.5.8 Diabetes 62 -- 3.6 CONCLUSION ON DATA ANALYSIS 66 -- 4 CHAPTER 4: INTERNATIONAL LITERATURE SCAN ON BARRIERS AND FACILITATORS .67 -- 4.1 INTRODUCTION .67 -- 4.1.1 Theoretical considerations 67 -- 4.1.2 Methods 67 -- 4.1.3 Limitations 67 -- 4.2 RESULTS 68 -- 4.2.1 Different types of barriers .69 -- 4.2.2 Barriers to specific services and programmes 71 -- 4.3 CONCLUSION 87 -- 5 CHAPTER 5: BARRIERS TO HEALTH CARE ACCESS IN BELGIUM FOR PEOPLE WITH INTELLECTUAL DISABILITY .90 -- 5.1 INTRODUCTION .90 -- 5.1.1 Aim 90 -- 5.1.2 Method 90 -- 5.1.3 Limitations 92 -- 5.2 BARRIERS AND FACILITATORS IDENTIFIED BY FIELD STAKEHOLDERS FROM THE DISABILITY SECTOR AND HEALTH CARE USERS WITH ID 93 -- 5.2.1 Barriers for all and for people with any specific needs .93 -- 5.2.2 Barriers specific to people with intellectual disability .98 -- 5.3 DISCUSSION .112 -- 6 CHAPTER 6: EMERGING SOLUTIONS AND EXISTING INITIATIVES TO IMPROVE HEALTH CARE ACCESS FOR PEOPLE WITH ID 115 -- 6.1 INTRODUCTION 115 -- 6.2 METHODS 115 -- 6.3 RESULTS .116 -- 6.3.1 Possible solutions to counter attitudinal barriers 116 -- 6.3.2 Possible solutions to counter knowledge and skill barriers .125 -- 6.3.3 Possible solutions to counter communication barriers – between protagonists involved in the health care 134 -- 6.3.4 Possible solutions to counter programmatic barriers 139 -- 6.3.5 Possible solutions to counter policy and social barriers 144 -- 6.4 CONCLUSION 148 -- 7 CHAPTER 7: EXPERT CONSULTATIONS ON PROPOSAL OF SOLUTIONS 150 -- 7.1 INTRODUCTION 150 -- 7.2 METHODOLOGY .150 -- 7.2.1 Selection of solutions 150 -- 7.2.2 Consultation of stakeholders in the health care sector 150 -- 7.2.3 Consultation of experts in the domain of ID .155 -- 7.3 RESULTS .157 -- 7.3.1 Stakeholder consultation 157 -- 7.3.2 Experts consultation .162 -- 7.4 CONCLUSION 167 -- 8 CHAPTER 8: POSSIBLE OPTIONS FOR IMPROVING ACCESS TO HEALTH CARE FOR PEOPLE WITH ID 168 -- 8.1 INTRODUCTION 168 -- 8.2 EMPOWERMENT OF PEOPLE WITH ID AND THEIR SUPPORTERS .168 -- 8.3 COORDINATION AND INTEGRATION OF HEALTH INFORMATION AND HEALTH CARE BY PRIMARY CARE 173 -- 8.4 REACHABILITY OF HEALTH CARE AND OUTREACHING .178 -- 8.5 AVAILABILITY OF HEALTH CARE PROFESSIONALS DURING CONSULTATIONS AND VISITS 181 -- 8.6 COORDINATION AND ACCOMPANIMENT IN HOSPITAL CONTEXT 183 -- 8.7 COMPETENCES OF THE EDUCATIONAL STAFF IN THE DISABILITY SECTOR .188 -- 8.8 SKILLS OF HEALTH CARE PROFESSIONALS OUTSIDE THE DISABILITY SECTOR 190 -- 8.9 MONITORING AND FOLLOW-UP OF THE HEALTH CARE NEEDS 191 -- 8.10 CONCLUSION 194 -- 9 DISCUSSION .195 -- 9.1 GENERAL REFLEXIONS ON MAIN FINDINGS 195 -- 9.2 LIMITATIONS .197 -- 9.3 FURTHER RESEARCH 198 -- REFERENCES 199 -- APPENDICES 211
Link for e-copy:	https://doi.org/10.57598/R361C
Format of e-copy:	PDF (6.5 MB)
Record link:	https://kce.docressources.info/index.php?lvl=notice_display&id=4871