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Acceptability and Perceived Benefits and Risks of Public and Patient Involvement in Health Care Policy / Irina Cleemput in Value in Health, 18(2015)04 ([06/01/2015])
[article] Acceptability and Perceived Benefits and Risks of Public and Patient Involvement in Health Care Policy : A Delphi Survey in Belgian Stakeholders [printed text] / Irina Cleemput , Author ; Wendy Christiaens , Author ; Laurence Kohn , Author ; Christian Léonard , Author ; François Daue, Author ; Alain Denis, Author . - 2015 . - 477-483.
Languages : English (eng)
in Value in Health > 18(2015)04 [06/01/2015] . - 477-483
Descriptors: Indexation
2012-70 ; Belgium ; Journal Article ; Patient Participation ; Peer Review ; Policy ; Public Health ; R195 ; Stakeholder involvementAbstract: BACKGROUND:
In systems with public health insurance, coverage decisions should reflect social values. Deliberation among stakeholders could achieve this goal, but rarely involves patients and citizens directly.
OBJECTIVES:
This study aimed at evaluating the acceptability, and the perceived benefits and risks, of public and patient involvement (PPI) in coverage decision making to Belgian stakeholders.
METHODS:
A two-round Delphi survey was conducted among all stakeholder groups. The survey was constructed on the basis of interviews with 10 key stakeholders and a review of the literature on participation models. Consensus was defined as 65% or more of the respondents agreeing with a statement and less than 15% disagreeing. Eighty stakeholders participated in both rounds. They were defined as the Delphi panel.
RESULTS:
Belgian stakeholders are open toward PPI in coverage decision processes. Benefits are expected to exceed risks. The preferred model for involvement is to consult citizens or patients, within the existing decision-making structures and at specific milestones in the process. Consulting citizens and patients is a higher level of involvement than merely informing them and a lower level than letting them participate actively. Consultation involves asking nonbinding advice on (parts of) the decision problem. According to the Delphi panel, the benefits of PPI could be increasing awareness among members of the general public and patients about the challenges and costs of health care, and enriched decision processes with expertise by experience from patients. Potential risks include subjectivity, insufficient resources to participate and weigh on the process, difficulties in finding effective ways to express a collective opinion, the risk of manipulation, and lobbying or power games of other stakeholders.
CONCLUSIONS:
PPI in coverage decision-making processes is acceptable to Belgian stakeholders, be it in different ways for different types of decisions. Benefits are expected to outweigh risks.Link for e-copy: http://www.dx.doi.org/10.1016/j.jval.2014.12.015 Format of e-copy: PDF [Requires Subscription) Record link: https://kce.docressources.info/index.php?lvl=notice_display&id=3671 [article]Animation techniques for better patient involvement / Marie Dauvrin / Brussels [Belgium] : KCE = Federaal Kenniscentrum voor de Gezondheidszorg = Centre Fédéral d'Expertise des Soins de Santé = Belgian Health Care Knowledge Centre (2021)
Animation techniques for better patient involvement : Patient involvement - KCE process book [printed text] / Marie Dauvrin , Author ; Laurence Kohn , Author ; Irina Cleemput , Author . - Brussels [Belgium] : KCE = Federaal Kenniscentrum voor de Gezondheidszorg = Centre Fédéral d'Expertise des Soins de Santé = Belgian Health Care Knowledge Centre, 2021 . - 39 p. : ill., ; A4.
ISSN : D/2020/10.2733/25 : € 0,00
Languages : English (eng)
Descriptors: Indexation
Methods ; Patient Participation
Classification
W 49 Handbooks. Resource guidesLink for e-copy: https://doi.org/10.57598/R340 Format of e-copy: PDF (1,02 Mb) Record link: https://kce.docressources.info/index.php?lvl=notice_display&id=4757 Collaborative Patient Centred eHealth / Etienne De Clercq / Amsterdam : IOS Press (2008)
Collaborative Patient Centred eHealth [printed text] / Etienne De Clercq, Author ; Georges De Moor, Author ; Joseph Bellon, Author ; Michel Foulon, Author ; Johan Van der Lei, Author . - Amsterdam : IOS Press, 2008 . - 215 p. : ill., ; 22 cm. - (Studies in Health Technology and Informatics, ISSN 0926-9630; 141) .
ISBN : 978-1-58603-922-6 : € 100,00
Proceedings of the HIT@HealthCare 2008 Joint Event: 25th MIC Congress, 3rd International Congress Sixi, Special ISV-NVKVV Event, 8th Belgian eHealth Symposium
Languages : English (eng)
Descriptors: Classification
W 26.5 Informatics. Health informatics
Indexation
Hospital Records ; Medical Informatics Applications ; Medical Records ; Medical Records Systems, Computerized ; Patient Participation ; Primary Health Care ; Secondary PreventionAbstract: In Medical Informatics three types of processes play a central role: organizational, patient-related and decision making-related processes. The first type deals with settings, such as a hospital care setting or a primary care setting; the second is related to health and disease (i.e. to patients); the third type of process aims at assisting in decision making and therapy and evolves in the brains of healthcare professionals. Hence, in all domains data, information and knowledge play a key role. As these three processes evolve, dealing with individuals – patients, doctors and nurses – because of that human factor there are obviously limitations imposed by formalization and standardization. In the past, there have been some unrealistic expectations regarding the possible contributions of medical informatics to healthcare. However, such contributions appeared to be very modest, to say the least. The same applies to the overly optimistic expectations regarding the introduction of electronic health records. Although the technology is widely available, all these developments appear to be far more complex than expected. The need for an improved understanding of the nature of medical knowledge to better serve health remains to be emphasized. Record link: https://kce.docressources.info/index.php?lvl=notice_display&id=3412 Hold
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Barcode Call number Media type Location Section Status 10273-02911 W 26.5 / DEC Book KCE Library (10.124) Available Developing an agency's position with respect to patient involvement in health technology assessment / Irina Cleemput in International Journal of Technology Assessment in Health Care, 36(2020)6 ([10/01/2020])
[article] Developing an agency's position with respect to patient involvement in health technology assessment : the importance of the organizational culture [printed text] / Irina Cleemput , Author ; Marie Dauvrin , Author ; Laurence Kohn , Author ; Patriek Mistiaen , Author ; Wendy Christiaens , Author ; Christian Léonard , Author . - 2020 . - 210 pp.
Languages : English (eng)
in International Journal of Technology Assessment in Health Care > 36(2020)6 [10/01/2020] . - 210 pp.
Descriptors: Classification
W 1 Serials. Periodicals
Indexation
Organizational Culture ; Organizational Policy ; Patient ParticipationAbstract: The Belgian Health Care Knowledge Centre (KCE) formally involves stakeholders in HTA since 2012. Patients are treated as one stakeholder amongst others, but it is recognized that patient involvement (PI) requires a different approach. The success of implementing PIdepends, however, on the organizational culture toward PI.
Objectives. The objective of this study was to map the PI culture at KCE in the context of the development of organization-wide supported position statements about PI. Methods. A nominal group technique was used to measure the PI culture at KCE. Arguments for and against PI and conditions for PI in different phases of the HTA process were collected. A literature review and interviews fed the draft position statements, for which support was assessed by means of a two-round Delphi process. Results. Arguments in favor of PI in HTA related to the relevance of the scope, expertise with data collection, bringing in fresh ideas for study design, access to survey participants, validation of data analyses, adherence to recommendations. Disadvantages and risks included the lack of scientific knowledge of involved patients, resources requirements, conflicts of interest, and heterogeneity within patient populations. Conditions for meaningful PI referred to measures mitigating the identified disadvantages. Eighteen position statements supported by KCE could be formulated. Conclusion. The KCE culture seems predominantly positive toward PI, although attitudes vary between HTA researchers. KCE recognizes the potential value of PI in HTA, but considers the level of involvement to be contingent on the topic and phase in the HTA process.
Link for e-copy: http://vdic.idm.oclc.org/login?url=http://journals.cambridge.org/action/displayB [...] Format of e-copy: VDIC IP recognition Record link: https://kce.docressources.info/index.php?lvl=notice_display&id=4725 [article]De dokter en de dood / Lia van Zuylen / Stavenuiter Beheer B.V. (2014)
De dokter en de dood : Optimale zorg in de laatste levensfase [printed text] / Lia van Zuylen, Author . - Stavenuiter Beheer B.V., 2014 . - 240 p : ill., ; 22 cm.
ISBN : 978-94-91969-02-7 : € 35,00
Languages : Dutch (nla)
Descriptors: Classification
WT 116 Longevity. Life expectancy. Death
Indexation
Aged ; Attitude to Death ; Life Expectancy ; Patient Care Management ; Patient Participation ; Physician-Patient Relations ; Quality of Life ; Terminal CareContents note: Dit boek is relevant voor iedereen in de geneeskunde die in contact komt met grenzen aan behandeling van patiënten en met patiënten in de laatste levensfase. Zorg die de arts persoonlijk raakt. Record link: https://kce.docressources.info/index.php?lvl=notice_display&id=3518 Hold
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Barcode Call number Media type Location Section Status 10273-02977 WT 116 / VAN Book KCE Library (10.124) Available Readers who borrowed this document also borrowed:
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